Schizophrenia caregivers: a reaction to caregiving
Many caregivers answered one to handling individual is vital that you them (59.dos %) and they wanted to care for the diligent (fifty.3 %). A substantial proportion away from caregivers answered that they was indeed compliment enough to care for the in-patient (47.8 %), impact blessed to care for the in-patient (49.0 %), with sufficient bodily strength to look after the average person (43.step 3 %), liked caring for the in-patient (42.eight %), hence taking good care of the average person makes them feel a lot better (39.5 %) (select Fig. 1).
But not, a hefty ratio of caregivers showed that the brand new caregiving experience was difficult. Specifically, caregivers showed that caregiving got interrupted its times (36.3 %), you to definitely their bodies had become worse since performing caregiving (thirty-six.step three %), impact tired all day long as the doing care for the diligent (thirty five.0 %), maybe not going to friends around prior to (thirty-two.5 %), having difficulty relaxing because of constant disturbances (30.dos %), and having to end in the middle of really works (20.4 %).
A hefty ratio from caregivers shown inadequate service taking care of brand new patient. In particular, caregivers responded that they had monetary problems with the fresh new person’s demands and you may characteristics (34.cuatro %), your proper care got https://datingranking.net/dating-in-your-30s/ set an economic stress on their loved ones (thirty five.0 %), that it is difficult to find help from their loved ones (thirty five.seven %), you to their loved ones kept them by yourself to manage the latest patient (28.0 %), their loved ones “dumped” caring for the in-patient on it (twenty eight.0 %), and therefore their family abandoned him or her as undertaking care (21.0 %).
In general, informal schizophrenia caregivers exhibited poorer health-related outcomes than non-caregiver controls. After matching schizophrenia caregivers with non-caregivers with similar demographic and health characteristics, a substantially greater proportion of caregivers reported experiencing the following symptoms and conditions: sleep difficulties, insomnia, pain, headaches, heartburn, anxiety, and depression, all p <0.05. Schizophrenia caregivers also reported lower HRQoL and health utility compared with non-caregiver controls, all p <0.05. Indeed, the mean differences between schizophrenia caregivers and non-caregiver controls were larger than the MID for mental HRQoL and health utility.
Caregivers of schizophrenia patients and caregivers of patients with conditions other than schizophrenia reported similar poor health-related outcomes, although some differences emerged. After matching schizophrenia caregivers with caregivers of patients with conditions other than schizophrenia but with similar demographic and health characteristics, a substantially greater proportion of schizophrenia caregivers reported the following symptoms: sleep difficulties, insomnia, and anxiety, all p <0.05. Moreover, a substantially greater proportion of schizophrenia caregivers reported currently taking prescription medication for depression and a greater level of depression severity. Schizophrenia caregivers exhibited significantly lower mean mental HRQoL and health utility scores compared with caregivers of patients with other conditions, though these differences did not exceed our pre-defined threshold of meaningfully important differences, all p <0.05.
A prior review of published research of schizophrenia caregiver burden found that, overall, this population experiences deteriorated health, with stress problems, anxiety and depression . The current study corroborated these findings, as informal schizophrenia caregivers reported higher levels of these health issues relative to non-caregivers and caregivers of conditions other than schizophrenia. Zendijidjian et al. (2012) found that caregivers of patients with affective disorders scored significantly lower on all SF-36 domains than caregivers of schizophrenia patients . The current study, however, found significant differences on the MCS, but not the PCS when comparing schizophrenia caregivers and caregivers of other conditions. These differences could be due to the broader criteria provided for caregivers of other conditions in the current study. Papastavrou (2012), comparing schizophrenia, Alzheimer’s and cancer caregivers, on the other hand, found that caregivers of cancer patients experienced the highest levels of depression, while Alzheimer’s caregivers experienced the highest levels of overall burden (p <0.001) . Unlike previous studies of schizophrenia caregivers, the current study employed a representative sample of schizophrenia caregivers, directly comparing HRQoL and comorbidities for schizophrenia caregivers with non-caregiver controls, and schizophrenia caregivers with other caregivers. Because of this, making direct comparisons with prior studies is limited. However, a prior study using 2010 and 2011 5EU NHWS reports higher MCS, PCS and health utility scores for cancer caregivers than the current studies schizophrenia caregivers , suggesting potentially poorer HRQoL for schizophrenia caregivers than caregivers of cancer patients. Therefore, overall, given previous literature and the current study results, the health status of schizophrenia caregivers were found to be comparable if not worse than caregivers of other conditions.